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About us

 

We are a small team of people, all of whom are very concerned for people who have brain injury.

The team includes a neurologist, a neuropsychologist, a neurology nursing specialist and acquired brain injury experiential experts. In this way we can make the connection to both sides of the knowledge of brain injury and become a Knowledge Broker on ABI. We are not paid for the work on this site.

 

We have expenses to keep this website running.

Would you like to support us? Thanks a lot!

 

 

 

Our mission

  • We want knowledge about brain injury to be freely available and easily understood. Our aim is that not only people with brain injury, but also their relatives, friends and networks will easily find their way into the braininjury community for help, for tools, peer contacts, guidance, publications and shared experience tips.

 

  • Therefore, we won’t reinvent the wheel over and over, but we will provide links to websites with proven expertise, and where we can provide additional information we will do so in easily understood language.

 

  • We want to help the layperson to find information on the internet even if they don’t know the correct medical terminology. We want to promote rapid simple knowledge transfer by using visual support in the form of pictures and videos. We also try to apply many so-called "white space", blank lines, for people who quickly become overstimulated by letters. Where a medical term is used, it is to aid further internet searches.

 

  • We want to complement the brain injury-internet not by explanations for a particular audience, but by dealing with the whole brain injury spectrum on one site. That goal has not been reached yet and more pages will follow. Our guideline in this is the list: Traumatic and Non-traumatic brain injury. See also page ‘General Information about Brain Injury’. The existing pages will be rewritten to take into account the latest information.

 

  • We want to have a knowledge base for health care providers and people who work in health care. So protocols, guidelines and knowledge is available about brain injury 24 hours a day. Information available after registration with an account on our site.

 

  • We want to pass on news from scientific studies in the field of brain injury in every day language through Twitter.

 

  • We want to promote the wider availability of scientific studies, in particular benefiting people with brain injury who were not previously seen as a target group. We hope to achieve this by approaching universities and rehabilitation centers of excellence.

 

  • We want to accomplish better treatment methods for recovery and improve chances of living a full life with brain injury.

 

  • We want brain injured people to be able to participate in society where they previously could not because of invisible disabilities such as overstimulation, sensitivity, aphasia or neglect.

 

  • We want to reduce potential obstacles to participation in society by brain injured people. Everybody should be able to participate in society. We want to achieve this through the provision of information to various professional groups and through media.

 

  • We want long-term neuropsychological support to be accessible to people with brain injuries, and for them to be financially compensated.

 

  • We want the person with the diagnosis of brain injury to be recognized as an individual. We also want his/her life experience, wisdom and intellectual abilities to be recognized.

 

  • We want the knowledge and experience of caregivers to be included in the treatment and care of people with brain injury.

 

  • We want to connect peers with each other who might otherwise not find each other.

 

  • We want to give advice regarding new construction projects and renovations of institutions so that these locations are accessible to and comfortable for people with brain injury and sensory overstimulation complaints.

 

  • We want to be a platform for people with brain injury who make movies that reflect their inside-experiential world. We also want to produce good and innovative films about brain injuries.

 

  • We want to single out charities associated with brain injury, and assist them in campaigns to raise money and awareness.

 

  • We want to cooperate with all brain injury organizations, organizations for peer contacts and organizations that help brain injury victims, to serve humans with brain injury and to work together to solve the brain injury puzzle.

 

  • We cannot give medical nor (neuro-)psychological advice, we can only give information. Contact your doctor or a neuropsychologist for help.

If you can help us out with a better translation or if you have ideas to help us in any other way, please contact us